Alive, at home

Just a quick note to say I am alive at home. I had the tube change yesterday - which was needed as it was mostly blocked - it flushes much easier now with no resistance. My bilirubin was up over 500. I was at the hospital for 12 hours, and they wanted to keep me overnight because my hemoglobin dropped from 114 to 84. I refused to stay - I could not bear a night in hospital. I have hit a wall. So, I had to sign a special form for that. Right now I am in quite a lot of pain. Despite the discomfort (understatement) - signs seem to indicate that I am ok. I will write more tomorrow about details if I have the energy.